Care for pseudotumor cerebri?

The main part of the forum, for general questions about IIH only. Questions about treatments should be posted on the relevant 'Treatment' board, and posts about your progress should be made on the relevant board in the Members' Area.

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Forum rules
The General IIH Questions and Answers board is for posting general questions about IIH that don't fit into one of the other specific categories on the forum. If you're not sure where it goes, post it in here, and if a moderator feels it's more appropriate in another board. Below are some points to remember when posting on this board, and also some guidance on what not to post on this board and where it's more appropriate to put it.

General posting guidelines for the board:
  • please post only general IIH related questions in this board - specific questions about particular aspects of IIH should go on the relevant board in the "Discussions section of the site, i.e. 'Medical Treatments', 'Surgical Treatments', etc.
  • please remember that we're not doctors, and shouldn't be giving medical advice - please see the relevant sections in the forum's rules about medical advice and prescription medication. Sharing your experiences of what's worked for you and your IIH is fine, but you shouldn't be telling other members things like, "If you take X, Y and Z it will improve your symptoms" - there's more guidance on this in the forum rules.
  • please start a new thread for each of your questions, which will help other members who are searching for information on a specific subject and allow others to comment on your questions. If you're commenting on another member's post, please don't add in another question of your own to the discussion - start another thread for it.

What shouldn't be posted on this board:
  • news of your latest appointment, your progress following surgery, progress on a new medication etc. should not be posted on this board, but should be posted in the "Members' stories and updates" board
  • if it's a specific question about a particular treatment, please post it in the appropriate board within the "Treatment" section of the forum
  • Introductions should be posted on the "Introductions" board in the "Members' Area" of the forum
  • more general posts about how you're feeling related to IIH should go in the "Need Support?" section of the forum (registered members only in the 'Need Support?' board)
  • this area is for IIH related discussions only - general conversations, jokes etc. should go in the "Members' Area" - general conversations in either the "General Chat" board, or the "Members Lounge" (registered members only in the Members' Lounge)
...and of course as always, play nice and stick to the rules. ;)

Thanks.

This board is for general questions and answers relating to IIH only. Any other posts will be moved into the appropriate board by the forum staff.
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Hannah01
Nuclei
Posts: 30
Joined: Mon Mar 20, 2017 10:29 am

Care for pseudotumor cerebri?

Post by Hannah01 » Mon Apr 10, 2017 1:37 pm

Hi all,

My husband is diagnosed with pseudotumor cerebri. They say its the pressure inside the skull increases for no obvious reason and has caused her optic nerves to atrophy over time with no vision in the eyes. I am just lurking here to find any possible advice and tips?

Shelly
Plexus
Posts: 291
Joined: Mon Feb 27, 2017 2:16 pm

Re: Care for pseudotumor cerebri?

Post by Shelly » Mon Apr 10, 2017 9:38 pm

Hi Hannah, welcome to the forum. Pseudotumor cerebri is known as idiopathic intracranial hypertension here in the uk now.

I've learnt that it affects everyone differently. All suffer the same set of symptoms but to different extents. Sorry that hear you husband has been diagnosed with it. Xx

Hannah01
Nuclei
Posts: 30
Joined: Mon Mar 20, 2017 10:29 am

Re: Care for pseudotumor cerebri?

Post by Hannah01 » Fri Jun 09, 2017 5:57 pm

With the help of online reading materials i am slowing learning on these concepts

Hannah01
Nuclei
Posts: 30
Joined: Mon Mar 20, 2017 10:29 am

Re: Care for pseudotumor cerebri?

Post by Hannah01 » Fri Jun 09, 2017 5:58 pm

Agree IIH effects are different for individuals, some are same but not all that is why medical professional still continue to research on this topic

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