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Care for pseudotumor cerebri?

Posted: Mon Apr 10, 2017 1:37 pm
by Hannah01
Hi all,

My husband is diagnosed with pseudotumor cerebri. They say its the pressure inside the skull increases for no obvious reason and has caused her optic nerves to atrophy over time with no vision in the eyes. I am just lurking here to find any possible advice and tips?

Re: Care for pseudotumor cerebri?

Posted: Mon Apr 10, 2017 9:38 pm
by Shelly
Hi Hannah, welcome to the forum. Pseudotumor cerebri is known as idiopathic intracranial hypertension here in the uk now.

I've learnt that it affects everyone differently. All suffer the same set of symptoms but to different extents. Sorry that hear you husband has been diagnosed with it. Xx

Re: Care for pseudotumor cerebri?

Posted: Fri Jun 09, 2017 5:57 pm
by Hannah01
With the help of online reading materials i am slowing learning on these concepts

Re: Care for pseudotumor cerebri?

Posted: Fri Jun 09, 2017 5:58 pm
by Hannah01
Agree IIH effects are different for individuals, some are same but not all that is why medical professional still continue to research on this topic