Search found 19 matches

by Shelly
Mon May 22, 2017 10:54 am
Forum: IIH UK Announcements
Topic: IIH Survey Launch
Replies: 1
Views: 1196

IIH Survey Launch

~ IIH PSP Survey launch ~ https://derby.qualtrics.com/jfe/form/SV_1BakgGe2dLM9rkF Today we are launching our IIH-PSP survey. This is a survey that anyone can take part in so whether you have IIH, care for someone with IIH, are a friend of someone with IIH, a clinician treating IIH Patients or an org...
by Shelly
Mon May 08, 2017 3:51 pm
Forum: General IIH Questions and Answers
Topic: What was your LP pressure reading?
Replies: 5
Views: 3094

Re: What was your LP pressure reading?

Normal ICP is up to 20cm h2o Hannah, although in overweight people 20-25 can also classed as normal. I have found that most Dr's will diagnose IIH with a reading of 28 or higher. x
by Shelly
Tue May 02, 2017 11:37 pm
Forum: General IIH Questions and Answers
Topic: Ringing Ears and Spinning Head
Replies: 4
Views: 2478

Re: Ringing Ears and Spinning Head

Let me know how the appointment goes. xx
by Shelly
Wed Apr 19, 2017 9:00 pm
Forum: General IIH Questions and Answers
Topic: Ringing Ears and Spinning Head
Replies: 4
Views: 2478

Re: Ringing Ears and Spinning Head

Hi Hannah, I don't not have IIH, my daughter does, but I do suffer with vertigo. What you describe when turning over in bed is a classic symptom of BPPV. (Positional vertigo) I'd see your GP if this has never happened to you before. Xx
by Shelly
Mon Apr 10, 2017 9:38 pm
Forum: General IIH Questions and Answers
Topic: Care for pseudotumor cerebri?
Replies: 3
Views: 3427

Re: Care for pseudotumor cerebri?

Hi Hannah, welcome to the forum. Pseudotumor cerebri is known as idiopathic intracranial hypertension here in the uk now.

I've learnt that it affects everyone differently. All suffer the same set of symptoms but to different extents. Sorry that hear you husband has been diagnosed with it. Xx
by Shelly
Fri Mar 24, 2017 10:13 am
Forum: Polls
Topic: What was your opening pressure at diagnosing LP
Replies: 1
Views: 2319

What was your opening pressure at diagnosing LP

What was your opening pressure when you had your first LP?
by Shelly
Wed Mar 15, 2017 7:24 pm
Forum: General IIH Questions and Answers
Topic: What was your LP pressure reading?
Replies: 5
Views: 3094

What was your LP pressure reading?

My daughters was registered as +41 as the manometer only went up to 40.
by Shelly
Wed Mar 15, 2017 4:25 pm
Forum: IIH UK Shop
Topic: IIH UK Shop Link
Replies: 0
Views: 1133

IIH UK Shop Link

This is the place where you can buy IIH awareness merchandise. Current Stock: Awareness Pins Adult and Child Silicone wristbands Bobble Hats Beanie Hats Car stickers Squishy brains Sticky Note Pads Cotton Tote Shopping Bag Hoodies Running Vests Keep popping back to check for new items. http://iihuks...
by Shelly
Wed Mar 15, 2017 10:59 am
Forum: IIH Support Announcements
Topic: Welcome to our new forum
Replies: 0
Views: 3673

Welcome to our new forum

Hi everyone, Due to coding issues of our ancient, but popular, forum which was built in 2004 we decided to have a new one built that is also mobile friendly. All discussion boards remain the same so hopefully you will find your way around easily enough, we've lost our unique smilies though which is ...