Search found 19 matches

by Shelly
Thu May 31, 2018 2:16 pm
Forum: IIH UK Announcements
Topic: Latest Research
Replies: 0
Views: 101

Latest Research

We are excited to announce that our Research Paper ‘Characterising the patient experience of diagnostic lumbar puncture in idiopathic intracranial hypertension: a cross-sectional online survey’ has been published in the BMJ Open today. 30/5/18 This is our 1st piece of research to be published and a ...
by Shelly
Fri Apr 06, 2018 7:39 pm
Forum: IIH UK Announcements
Topic: Barriers to Weightloss and Exercise Survey
Replies: 0
Views: 263

Barriers to Weightloss and Exercise Survey

Participation request for research investigating the specific barriers to weight loss and exercise in idiopathic intracranial hypertension. IIH UK's research Reps Amanda Denton (Plymouth University) and Krystal Hemmings (The University of Derby) would like to invite you to take part in a research st...
by Shelly
Tue Mar 06, 2018 11:41 am
Forum: IIH UK Announcements
Topic: IIH Survey
Replies: 0
Views: 477

IIH Survey

~ IIH Priority Setting Partnership ~ In 2017 we conducted a survey to collect uncertainties about the causes, diagnosis, management and provision of care for adults (16+) with Idiopathic Intracranial Hypertension (IIH), we had a great response with 349 patients, carers and healthcare professionals s...
by Shelly
Mon Jan 22, 2018 5:05 pm
Forum: IIH UK Announcements
Topic: IIH UK 2018 Patient Conference.
Replies: 0
Views: 589

IIH UK 2018 Patient Conference.

~Patient Conference Announcement~ We are pleased to announce that this years Weekender will take place from Friday 6th - Sunday 8th July with our Patient Conference and AGM taking place on Saturday 7th July at the Park Inn by Raddison Hotel, Birmingham Road (M5 Jct1) West Midlands B70 6RS. Please vi...
by Shelly
Wed Nov 08, 2017 11:59 am
Forum: IIH UK Announcements
Topic: IIH Weight Trial
Replies: 0
Views: 813

IIH Weight Trial

Birmingham IIH have created a fb page to help recruit controls (people without IIH) to the weight trial. You can find the page here: https://www.facebook.com/birminghamIIH/ Are you overweight? Would you like to help with a national research project? If you are female, 18 or over and overweight (with...
by Shelly
Fri Sep 01, 2017 6:52 pm
Forum: IIH UK Announcements
Topic: September Awareness Month is here!
Replies: 0
Views: 937

September Awareness Month is here!

Today is the first day of Awareness Month. We hope you are looking forward to the busy month ahead. What better way to get Awareness Month off the ground than to share this poem with you all written by IIH UK's co-founder, Rachel Turner.
2017 poem.jpg
2017 poem.jpg (336.4 KiB) Viewed 937 times
by Shelly
Thu Aug 24, 2017 10:08 am
Forum: IIH UK Announcements
Topic: New GLP-1 drug found to lower brain pressure
Replies: 0
Views: 982

New GLP-1 drug found to lower brain pressure

Exciting news from Birmingham this morning. New GLP-1 drug found to lower brain pressure. Dr Sinclair says '"We are very excited that this novel treatment strategy could make a landmark change for future patient care." We welcome this outstanding new research, well done Dr Sinclair and her research ...
by Shelly
Mon Jun 12, 2017 11:19 am
Forum: Diet and exercise
Topic: Diet for IIH Patients
Replies: 1
Views: 2265

Re: Diet for IIH Patients

Hi Hannah, a few years ago we were advising to cut out things like Vitamin A, caffeine and artificial sweeteners as they can affect ICP. There was once a list containing lots of different foodstuffs to avoid but some people were taking it to the extreme and cutting out almost everything on the list ...
by Shelly
Mon Jun 12, 2017 11:09 am
Forum: IIH UK Shop
Topic: Limited edition Hoodie!
Replies: 2
Views: 2803

Re: Limited edition Hoodie!

I bought the burgundy one. It looks great. x
by Shelly
Fri Jun 02, 2017 8:33 am
Forum: Good news stories
Topic: Loving mum suffering from an incurable illness
Replies: 3
Views: 1180

Re: Loving mum suffering from an incurable illness

Hope they reach their target Hannah, thanks for sharing. X