Search found 15 matches

by Shelly
Wed Nov 08, 2017 11:59 am
Forum: IIH UK Announcements
Topic: IIH Weight Trial
Replies: 0
Views: 84

IIH Weight Trial

Birmingham IIH have created a fb page to help recruit controls (people without IIH) to the weight trial. You can find the page here: https://www.facebook.com/birminghamIIH/ Are you overweight? Would you like to help with a national research project? If you are female, 18 or over and overweight (with...
by Shelly
Fri Sep 01, 2017 6:52 pm
Forum: IIH UK Announcements
Topic: September Awareness Month is here!
Replies: 0
Views: 395

September Awareness Month is here!

Today is the first day of Awareness Month. We hope you are looking forward to the busy month ahead. What better way to get Awareness Month off the ground than to share this poem with you all written by IIH UK's co-founder, Rachel Turner.
2017 poem.jpg
2017 poem.jpg (336.4 KiB) Viewed 395 times
by Shelly
Thu Aug 24, 2017 10:08 am
Forum: IIH UK Announcements
Topic: New GLP-1 drug found to lower brain pressure
Replies: 0
Views: 375

New GLP-1 drug found to lower brain pressure

Exciting news from Birmingham this morning. New GLP-1 drug found to lower brain pressure. Dr Sinclair says '"We are very excited that this novel treatment strategy could make a landmark change for future patient care." We welcome this outstanding new research, well done Dr Sinclair and her research ...
by Shelly
Mon Jun 12, 2017 11:19 am
Forum: Diet and exercise
Topic: Diet for IIH Patients
Replies: 1
Views: 951

Re: Diet for IIH Patients

Hi Hannah, a few years ago we were advising to cut out things like Vitamin A, caffeine and artificial sweeteners as they can affect ICP. There was once a list containing lots of different foodstuffs to avoid but some people were taking it to the extreme and cutting out almost everything on the list ...
by Shelly
Mon Jun 12, 2017 11:09 am
Forum: IIH UK Shop
Topic: Limited edition Hoodie!
Replies: 2
Views: 1179

Re: Limited edition Hoodie!

I bought the burgundy one. It looks great. x
by Shelly
Fri Jun 02, 2017 8:33 am
Forum: Good news stories
Topic: Loving mum suffering from an incurable illness
Replies: 3
Views: 615

Re: Loving mum suffering from an incurable illness

Hope they reach their target Hannah, thanks for sharing. X
by Shelly
Mon May 22, 2017 10:54 am
Forum: IIH UK Announcements
Topic: IIH Survey Launch
Replies: 1
Views: 564

IIH Survey Launch

~ IIH PSP Survey launch ~ https://derby.qualtrics.com/jfe/form/SV_1BakgGe2dLM9rkF Today we are launching our IIH-PSP survey. This is a survey that anyone can take part in so whether you have IIH, care for someone with IIH, are a friend of someone with IIH, a clinician treating IIH Patients or an org...
by Shelly
Mon May 08, 2017 3:51 pm
Forum: General IIH Questions and Answers
Topic: What was your LP pressure reading?
Replies: 5
Views: 1635

Re: What was your LP pressure reading?

Normal ICP is up to 20cm h2o Hannah, although in overweight people 20-25 can also classed as normal. I have found that most Dr's will diagnose IIH with a reading of 28 or higher. x
by Shelly
Tue May 02, 2017 11:37 pm
Forum: General IIH Questions and Answers
Topic: Ringing Ears and Spinning Head
Replies: 4
Views: 1301

Re: Ringing Ears and Spinning Head

Let me know how the appointment goes. xx
by Shelly
Wed Apr 19, 2017 9:00 pm
Forum: General IIH Questions and Answers
Topic: Ringing Ears and Spinning Head
Replies: 4
Views: 1301

Re: Ringing Ears and Spinning Head

Hi Hannah, I don't not have IIH, my daughter does, but I do suffer with vertigo. What you describe when turning over in bed is a classic symptom of BPPV. (Positional vertigo) I'd see your GP if this has never happened to you before. Xx