I agree that there are a ton of different factors that cause IH. I have been tested for lupus (since my ANA turned up highly positive), but I have all negative tests and no other symptoms, so they are thinking I'm idiopathic. I have expressed how I have always had issues with periods (started young at age 10 and have always been laid up with pain and illness from it), and then once I stopped the birth control pills IH symptoms started (along with the usual menstrual problems I would get before I started on the pill). The pill was a godsend for me, but I couldn't get accepted for insurance and had to stop the pill because of the costs (US is terrible with health insurance). I want my doctors to at least try something to "regulate" my hormones and see what happens, even just for a month. If I have a horrendous pressure spike then we will know, I will drop the issue and move on to a different plan of action. If a patient is willing to try, couldn't they atleast think about it instead of shutting down the idea before I am done talking?
This has been a huge battle for me the last few months.. thanks rubiesmum for bringing up the issue!! I definitely want to know what your neuro says after your appt!!! Good luck!