welcome to the group, but sorry that you have to be here. IIH is one of those conditions that very few of us had ever heard of before we got it, and then we had been suffering these horrible symptoms and then find out we have this rare crazy condition and its all such a shock. you wonder if things will ever be the same.
there is hope. iih is hard and there is no denying it can have a massive impact on life but it can be manageable. for some people it clears up entirely, other people find a balance and learn to live with it, but for some though it is a hard path to find their solution because the exact cause of the disease is still unknown. you have to take things one step at a time. but the first step is getting a diagnosis and getting on some medication. for many people that starts to bring the pressure down and things start to improve. however there other things that can be done like life style changes and management tips to get through the day - have a look through the site for ideas, when your head isnt too bad. and later down the line there will also be surgery options if you have to look at further measures, but like i said, one step at a time.
I spent a long time unable to work with my IIH, my opening pressure was 38. I was on diamox and topamax for a long time, but i have just come off diamox. I still have to manage my condition, so i dont think i am 100% in remission, but i am back at work and living an almost normal life. a far cry from those first months when I couldnt move for pain. some people find they are not able to go back to work with their IIH, however there are still ways that you can balance IIH with your life to do what you can with the condition. Some people are able to keep working. I hope that you will be one of the many that responds to the medication and see improvement quickly.
Best of luck to you