Author Topic: more stents and a styloidectomy!  (Read 1856 times)

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Offline andreamay

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more stents and a styloidectomy!
« on: June 24, 2014, 09:19:21 AM »
Hello all, sorry I havnt been around much lately! Suffering quite a bit! Dr Higgins contacted me after their last MDT meeting and I'm going in on 14th July for more stents on the right and after that a styloidectomy on the left to make room for stenting the jugular, has anyone here had this? Mr Axon does the styloidectomy, so I guess I will be going to see him soon. I already have 9 stents and a lumbopleural shunt so I'm not new to this but I see from Facebook that a number of patients have been contacted about the same treatment. So I'm curious if this approach has worked for anyone. Andrea x
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Offline Keren

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Re: more stents and a styloidectomy!
« Reply #1 on: June 24, 2014, 05:12:44 PM »
No i havent had this but i just wanted to say big hugs and lots of support!  :grouphugs
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Offline spikeylisa79

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Re: more stents and a styloidectomy!
« Reply #2 on: July 12, 2014, 11:26:26 PM »
I'm like you Andrea waiting to see mr a. Have you got date yet? Good luck for monday. Hopefully you will know more then. If you already got 9 stents. Have you got much more space to put more? Guess you have! I know one of mine 8cm long.
 :coolup all the bests for monday x

Offline dabirg

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Re: more stents and a styloidectomy!
« Reply #3 on: July 13, 2014, 11:01:56 AM »
Hi Andrea - hope your addenbrookes appt goes to plan this time and you don't get bumped again.  Gill is still there I think so you may meet.  she has had plenty of procedures recently and is having yet more stents too. I so hope they hit on a fix for you guys and end the suffering. Gill