Hi, my name is jade.
I'm relatively new to this site so still don't know if I'm asking in the right place or not, but here seemed fitting. I got my diagnosis of IIH two months ago. I had my lumbar puncture done about a month ago, where my opening pressure was 32. My neurologist told me that it was "significantly high" (??) And that I should carry on with the diamox, which he had already previously prescribed me a week before. I've had my dosage raised since then and I'm not on 2g daily but nothing seemed to be helping.
My headache seems to be getting worse. It's been like this the past 5 days. It constantly feels like my heads in a vice and morning and nights are the worst. I'm in tears with the pain, and I keep getting really blurred vision in my right eye. I'd previously been told by my ophthalmologist that I've got swollen optic nerves, but my neurologist seems to think that the diamox should of helped with the eye problems also. But after a month of being on 2g daily, shouldn't it of been working by now? Is it likely I'll need a shunt? I'm in so much pain that a shunt would probably be welcomed right about now!!!
Thank you in advanced :)